Thanksgiving Weekend

Last week Monet and Billy (Dad) went to Disneyland, they had a great time together. Monet also went to work with me on Monday and was spoiled by my co-workers. Now she can't wait to go again.

We had a wonderful Thanksgiving, thanks to East Hills Community Church and Candlelighters. Also, thanks to my wonderful husband who spent days preparing, serving, and cleaning up a great meal. The next day we enjoyed leftovers with my brother and sister in law.

Saturday, I took Monet to see the Festival of Trees with Ms. Kathy and Kay. It was really fun. The kids played a scavenger hunt and Monet won a prize. Her class decorated a tree which we got to see displayed. We also saw the movie Bolt, which was quite funny.

Sunday we got a visit from my friend Ruth (that I have known since 6th grade.) Her son has leukemia too. It had been a while since I had seen her, so it was nice to have lunch and spend time with her. Thanks to her brother for the Etnie shirts, Billy Boy would (and will) love them! Thanks to her Mom and sister for the gifts for Monet, she's already working on the weaving. All in all we had a very pleasant week.

Thank you Lee's!

This year has been the year of trials and tribulations for our family. Our faith has been tested in so many levels. We have all questioned at one time or another, “Is God there for us?” At times we have felt lonely, hopeless, abandoned. However God’s love for us is so powerful that it always prevails. He has shown his love for us through our family and friends, and sometimes even strangers. This Thanksgiving we have been truly blessed by one of our long time friends, part of our family, the Lee’s. Through their love and generosity, we finally were able to achieve our goal of getting a Handicap access van. The impact they have had on our lives is immeasurable, and words of appreciation are not enough. However, for now, words and prayers are all we can offer. May God Continue to bless you and “Thank You” from the bottom of our hearts!

Revelation

As you could tell by my last blog, we have been a little down lately. Actually, quite a bit down. I have been praying a lot, asking God to help me get through this, to understand, to help me to have faith, to make sense of all this. I have felt abandoned. Then last night, I had put on "Finding Nemo" for Billy Boy. I was in and out of his room as usual. At 9:00 I went in to give him his last feeding and medicines when I heard Marlin (Nemo's worry wart Dad) and Dory (the forgetful friend) talking in the mouth of a whale. She was telling Marlin that the whale wanted them to "Let Go", that it would be "O.K". "How do you know?" he asked. Dory answered, "I don't, you just have to trust."

All of the sudden, I got the message. God just wants me to let go and trust him in what he is doing. It may seem silly, but I believe God talks to us in ways that he believes we will actually listen. Maybe he was talking to me all along, maybe he just hoped, that through "Finding Nemo"... he might finally be heard.

Next round of Botox

Billy received the next round of Botox shots. He's had a rough weekend with swallowing and stomach problems, which makes it rough for us. Some of it might be allergies, sinus problems or a cold, it's hard to tell. In a couple of days his relaxation will kick in and that will help his arms feel better.

This last couple of weeks have been very emotional for us. Good things are starting to take place. God is blessing us by surrounding us with people that want to help and it is humbling. Billy Boy seems to be communicating with us by opening and closing his mouth. On the other hand, with the holidays coming, I can't help but miss him terribly. The more time that passes, the more hopeless it feels. It kills me emotionally to trust God and what he has in store for us, when I see my son in the state he is in. It is a spiritual battle that is hard to explain, especially if you have no idea what it's like. Sometimes I wish I could curl up in a ball, but I have Monet, and that is just not possible.

I am also not feeling well and that brings me down as well. Hopefully in a couple of days, we will all start to feel better.