After a rough weekend, I called Palliative care and they will meet us at our next Dr.'s appointment, from there on they will be making sure that Billy Boy's pain is handled in a more timely manner (apparantly pain is their department.) For those of you who don't know, Palliative care is like Hospice, but for the living.
Pheww! The last two days have been better... knock on wood. We finally received the new formula so hopefully it will make a difference. We also received a better fitting vest for his percussion machine and he has coughed quite a bit more (which helps clear out his lungs.) Keep him in prayer so he can remain healthy enough to get those much anticipated Botox shots.
Pheww! The last two days have been better... knock on wood. We finally received the new formula so hopefully it will make a difference. We also received a better fitting vest for his percussion machine and he has coughed quite a bit more (which helps clear out his lungs.) Keep him in prayer so he can remain healthy enough to get those much anticipated Botox shots.
1 comment:
Billy Boy looks so good!!! Praying for him and all of you!!!
Love and miss you all so much. Hope to see you soon!!
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