Billy was able to receive the Botox shots yesterday morning! Praise God!!! We should see improvement within the next five days, however the tendon in his arms has already shortened and the most he will relax is to a ninety degree angle... but we'll take it. He was a little pale, so we kept him on oxygen till this morning.
On the other hand, he has been having Gastrointestinal problems. We received a pump today and we'll be trying 20 hour drip feedings for the next six days to see if he digests the food a little better. If the crying doesn't stop, he may need to be hospitalized to see what is going on. If it does help, then eventually, we will be switched to 12 hour drip nightly pump feedings. He also has thrown up a few times and with the risk of aspiration, he will require a nissin fundiplication so that the food can not come back up. I think at this point, that might really benefit him.
We can only take things one day at a time, one step at a time, and pray that it will all get better... what else can we do?
No comments:
Post a Comment