Wow, we had a busy week. Doctors appointments like crazy. We are finally seeing some improvement. The botox shots have kicked in, we received his elbows splints just in time, and he is tolerating them for about one and a half hours at a ninety degree angle. We are still waiting for his wrist splints and his leg splints. He is doing better on a twenty hour feeding drip and they added Reglan for the reflux. His neurologist also wants him on a constant low dose of Valium for the spasticity (which apparently can attack the GI organs as well.) His breathing is still chronic (noisy), but we can only address so much at once.
On the other hand, I am feeling a bit down lately. I miss my boy. We were so close... I would do anything to have him back, talking to me, making me laugh, cuddling with me. At least a smile, a simple smile would make my day. Pray for a smile for me, please!
On the other hand, I am feeling a bit down lately. I miss my boy. We were so close... I would do anything to have him back, talking to me, making me laugh, cuddling with me. At least a smile, a simple smile would make my day. Pray for a smile for me, please!
3 comments:
Dear Viv,
So glad there seems to be progress being made with Billy Boy. It's trial and error isn't it?
I'm praying that God will bring the sound of Billy Boy's voice and the feel of his touch to your remembrance. That He will provide you with His comfort.. I know you miss him.. I know there are so many of us that wish we could ease the burden for you both..
We love you! hang in there! Penny
Our prayers, thots and best wishes go out to you... We think of you every day... For some reason unknown to me God is doing this for a reason.. I have faith that some day it will all make sense and the 4 of you will make sense of this... We love you guys, stay strong.. The Zitos, Tony, Vincent, Erin, Shelle..
Hello Vivian, Billy, Billy Boy and Monet,
My name is Elizabeth Challender and I am Irene (Cammy) and Bill Heit's daughter. Vivian, our mothers are first cousins so that makes us 3rd cousins. I found out about your story from my mom and recently checked out your Moss Family Blog. I find myself checking this Blog every day to see if there are any updates on Billy Boy. I am a wife, mother of 2 and an occupational therapist and Billy Boy's Story has really touched my heart. Please know that Billy Boy and your family are in my thoughts and prayers.
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