October 2011

Ok, so October didn't turn out to be any easier than September. In fact things got worse and harder. I don't see it letting up until after January, so we'll just have to deal with it till then.

Monet is suffering from migraines and is taking medication for it. This has been particularly hard on her sleeping since they seem to get worse at night. The CT scan showed her adenoid was swollen from severe, chronic allergies. The result of living in Riverside, living right across from citrus park probably doesn't help either. I'm hoping that if we get those in control, maybe it will help the migraines.

Billy Boy was doing pretty good for a few weeks there. Got rid of his respiratory infection and was resting comfortably... until this week. Suddenly his pain is worse, whatever it is from; hip, back, growing pains, spasticity. Whatever it is, he's not sleeping and is visibly in pain. The good news is he is having the Baclofen pump trials on November 8th. (Hopefully, they've rescheduled it twice.) The bad news is the other surgery takes priority, so unless they can do it at the same time, it may be a while before he gets it done.

Billy (Dad) has had a rough month as well. First he had pneumonia, next he hurt his back and hasn't been able to help me lift Billy Boy, last he has acute bronchitis and upper respiratory infection due to.... you guessed it... allergies!

In all this, I've had a mess with nursing. My weekly day nurse has been out for a month and needs surgery next week. She'll be out till mid to late November. One of my night nurses was out for two weeks. Nurses calling in sick or just out, then having to train new ones just to figure out they wont work out then having to train new ones. All this and now money issues have finally caught up with us since we didn't get paid for the month of February. It's all starting to take it's toll on me!! However, when life gets tough... trust in the Lord!! And right now I have all my faith in him!!!