Is it March already?

Wow, it has been a long time since my last blog. Too long. We have been so busy with appointments, work, appointments, school, and more appointments. The formula we switched him to did the trick, his stomach woes are over (at least for now.) It's been so nice, we can even feed him in the wheelchair. That's not to say we don't have bad nights, because we still do, but they are definetly more tolerable. His chest infection is finally gone as well, it took three months to clear up, now he just has inflammation so they put him on an inhaler. We also found out he has scoliosis, common in wheelchair kids, so they made a body cast and we pick up that new orthotic on Friday. Pretty soon he's going to look like one giant cast, Lol! He is 5'5" and weighs 122 pounds , so growing is not an issue for him. Thursday he gets his next round of Botox (Thank God they have kept his pain under control.) Billy Boy is standing up for 35-40 minutes at a time, his ultimate goal is one hour. He'll get there, slowly but surely, he'll get there. We have also been taking him for walks in his wheelchair everyday. It's been nice for him, and for us as well, interacting with him more.

Monet's 9th birthday passed, and she celebrated by having a small 80's party. We turned the living room into a discotheque and the girls danced and had a good time. We are so proud of Monet for once again getting straight A's on her report card. She is also reading to Billy Boy 20 minutes a day. She loves spending time with her brother.

I am applying for a grant for Billy Boy to get Hyperbarics again, please pray that it gets approved, that would really help us out. I have so many applications to fill out for services he needs, I'm also praying I get all of them done in time. I've been feeling pretty positive lately, Billy Boy being content has a lot to do with it, but living and loving one day at a time helps too!