Painful nights

Billy Boy is still in a lot of pain at night. The stander makes it so much worse, the physical therapist would like us to continue using it, but she isn't here at night and I can't watch him suffer. Nights have been awful for him, so I'm keeping optimistic that the Orthopedic specialist will want to do something about it. If that doesn't work, then I will involve Palliative care to make sure his pain needs are met. We are still waiting for a referal, so I'm praying it will take place soon and that he gets some relief.

This is the month of all his annual appointments, so we have two appointments per week for the next few weeks. This week we see the pulmonologist and gastrointerologist.

Work is going good so far.

Monet is back in school and doing well.