Thursday, April 30, 2009
Prayer request
Please pray for us, our contract at work is up and we would like to get it again. Between that, hyperbarics, all the agencies, Billy Boy, the flu... we are at God's mercy!
Wednesday, April 29, 2009
Under pressure
I've been feeling a lot of pressure lately. Perhaps I'm a little down as well. Praying things will change. Trying to act positive so I can turn things around.
Sunday, April 26, 2009
Congratulations Chris & Jodie
Tuesday, April 21, 2009
Up all night
Billy Boy was annoyed all night and day. He didn't sleep a wink last night and only slept for a few hours today. His nurse was perplexed and thought he was still mad at us from yesterday. (We took him to CCS for his annual Physical Therapy assessment and she made him cry.) Shortly after I got home from work, we put him in the wheelchair, and he finally calmed down. Poor kid wanted up all along. He then stood in the stander for 45 minutes and sat in his chair for a couple more hours. He is definitely letting us know when he is uncomfortable. It just isn't always easy trying to figure out what is bugging him.
Wednesday, April 15, 2009
Easter Weekend
We had a pretty good weekend. Took Monet to church for Good Friday. Made it to church Easter Sunday as well. We ended up leaving a little early because we couldn't get Billy Boy to stop snoring. Normally he does that (awake) when he is annoyed. This time he was knocked out, so we decided to take him home. We still had a nice day. God has been so good to us. We were able to count our blessings and explain to Monet the sacrifice that Jesus did for us, but most importantly the ressurection.
We have noticed that lately Billy Boy is holding his pee in when he is sitting in the wheelchair. Don't know if that means anything, but it seems like there is more brain activity.
We have noticed that lately Billy Boy is holding his pee in when he is sitting in the wheelchair. Don't know if that means anything, but it seems like there is more brain activity.
Friday, April 10, 2009
Joe's Birthday
Tuesday we celebrated Billy's best friends birthday. Joe and his family came over and we had cake and ice cream. Billy Boy is blessed by Joe's friendship!
Billy Boy is up to 30 minutes on the stander. He seems to really enjoy it, craking the occasional smile at us. It really made his Grandma and Grandpa very happy.
L.A. Philharmonic
Friday, April 3, 2009
Stander
We picked up the stander for Billy Boy. Yesterday was the first time he tried it out, a physical and occupational therapists were there to help us out along with the vendor. We stood him up and placed him in front of a mirror. (They told us the first time a patient stands up after being in bed for so long, they can pass out.) Billy Boy did really well. At the end of 15 minutes he turned a little pale so we lowered him. He hadn't eaten since early morning since we had Hyperbarics in the morning, so I wasn't too worried.
Today we stood him up again at home. This time he had eaten first. Once again, he did really well and even seems to enjoy it. This will be really good for him in so many ways. It will help with circulation, bone loss, his digestion, keeping his hips in place, balance, the list goes on and on. We are all so proud of him!
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