Busy, busy

Sorry I haven't had time or is it energy to blog lately. Billy has been sleeping worse than ever. Billy (Dad) and I are going on 4 to 5 hours of sleep per night. It's getting tough. We are taking him off the Ambien little by little since it makes him irritable and he doesn't fall asleep either. I might give it to him at noon time instead. We've had more appointments and updating insurance, trying to push regional into helping us, setting up a Special Needs Trust, selling the truck, buying a van, hyperbarics, etc....all with little sleep is starting to wear on us.