Thank you to everyone that attended or participated in the Fundraiser at the Park or the fundraiser at work. We truly appreciate all the love and support we have received over the last several months. Although we struggle with our faith daily (God understands), your prayers carry us through each day. A special Thanks to Cindy and Stefanie in Azusa for all you guys have done for us. An extra special Thanks to Ms. Kathy for being a part of our lives, we are truly blessed to have you.
Billy Boy (Rebar) has had an extra
hard week (and so have we.) He has a respiratory infection (Pneumonia) and has been on oxygen since last Friday. He was supposed to have Botox shots in order to decrease the spasticity of the muscles in his arms, but that had to be cancelled due to the illness. He is in excrutiating pain and we give him muscle relaxers and valium, but sometimes even thats not enough. I'm also looking into Oxygen Hyperbaric Chambers (which I have read in Anoxia blogs) that it has helped with spasticity. We have five different visits next week, getting him into a car is a pain, so we will be needing a wheelchair van.
Monet is doing well, she is turning seven on Sunday. She too has her moments and misses her brother. We are all adjusting to the new Billy we have, while mourning the loss of the Billy we loved so much!
Billy Boy (Rebar) has had an extra
hard week (and so have we.) He has a respiratory infection (Pneumonia) and has been on oxygen since last Friday. He was supposed to have Botox shots in order to decrease the spasticity of the muscles in his arms, but that had to be cancelled due to the illness. He is in excrutiating pain and we give him muscle relaxers and valium, but sometimes even thats not enough. I'm also looking into Oxygen Hyperbaric Chambers (which I have read in Anoxia blogs) that it has helped with spasticity. We have five different visits next week, getting him into a car is a pain, so we will be needing a wheelchair van. Monet is doing well, she is turning seven on Sunday. She too has her moments and misses her brother. We are all adjusting to the new Billy we have, while mourning the loss of the Billy we loved so much!
10 comments:
You are a family of superheroes! You inspire me.
Matthew
a.k.a. "Feedback" from "Who Wants To Be a Superhero?"
Vivian and Billy-
We are so glad the fundraiser was successful! We are so amazed by the strength that you show. As always, you are all in our prayers. Remind Monet that we have a date for Horton. I believe it comes out in March and Alex can't wait to go with her.
Tracy and Steve Buss
I am really happy that the fundraiser went well. I am trying to find a time that I can actually sit down and be able to talk to you about the one here just so that I don't miss out on any important information. I have someone very special in my life who is going to help me get everything back on track so that we can start hopefully with the fundraiser by may. I love you all, your so strong.
I hate that our presence in your lives consists of this and prayers. I can only hope that the prayers are enough. I'm so glad that the fundraiser went well.
I have known you all most my entire life Vivian and I can only say, you amaze me each and every day!
Much love,
Malia and family
My love and prayers go out to you guys.We miss you guys. You are a very special family and with God on your side everything will turn out great.May he bless you with much peace and strength to meet each day head on. Trying my best to go and see you guys soon. Love ya. The Briones Family, Hector
We really wish we could have been there for the fundraiser, we miss you guys!! Please know that you are in our prayers daily and we look forward to the day we see you again. You are a very special family and your company is amazing!!
Love and Hugs!
The Athertons
Angela, Guy, Jordan, Ben and Emma
Hi Viv and Family. It's great to have a place to "virtually" gather. We are always praying for Billy and all of you. Love,
Jose L. Ramirez
Vivian and Billy,
Your are an amazing family! I gain strength just knowing you. You are always in my prayers.
Love,
Laurie
Hi Bill and Vivian,
This is Richard Chabolla checking in with you. Just want to tell you we are continually praying for your whole family. Still believing God for a miracle!!! May the Lord continue to give you the strength you need daily.
Love You Guy's!
I hope that I have finally figured out how to post onyour blog after numerouos failed attempts. Our prayers are always with Billy Boy.
Post a Comment