Summer has come and gone quickly this year. This is the first summer in almost four years that we've had the freedom to do things with Monet as a family. It is also the first summer that I haven't felt guilty for enjoying myself while Billy Boy was at home. We have three wonderful nurses that take such great care of him while I'm away, that I can actually enjoy myself. This summer we took Monet to so many places she had missed out on. She actually wrote a list of things that she wanted to accomplish this summer and she marked off 80% of it. I have felt very blessed.
On the other hand, this is also the first summer that Monet has had a hard time with what happened to Billy Boy. I believe it has something to do with her age, but she has had some very hard internal battles with whats happened and what could happen, to him, to us and to her. It's been very hard to see her go through this and very trying at times, but she's a smart girl and a tough cookie. Luckly, she has been able to express her feelings to us and our pastor, and wit God's help, she is learning to deal with it.
This is also the first summer Billy Boy has slept through the night. Ok, so it's been on and off, but I'll take what I can get. Night time is my shift and it is a hard shift when he is awake and mad. His hip is still bothering him and he is going through some major growing pains, but we are back on track with his Botox shots. They are also working on a new wheelchair that will fit him better and should be more comfortable. We hope to have it ready by Christmas.
We are rounding off the end of summer with lots of appointments for Billy Boy, Monet, & even Billy (who ended up with pneumonia.) This last week off, we are meeting with some friends, slumber party, getting ready for school, and a fishing trip for Billy, the it's back to our busy schedules.
