Wednesday, March 30, 2011

Donations needed!!

I am participating in the 2011 Ronald McDonald House Charities of Southern California Walk for Kids. It's a 5k walk/run taking place on April 10, 2011. The money raised will benefit Camp Ronald McDonald for Good Times. This camp has an amazing staff and group of volunteer counselors, Oncologist, and RN's that make the camp experience magical for kids with cancer and their siblings. The kids stay in cabins by their age group and are able to participate in horseback riding, swimming, fishing, archery, cooking, perform campfire skits, broadcast a radio station, attend a dance and so much more. This camp helps children fighting cancer (and their families) forget about their troubles for a little while. Camp Ronald McDonald for Goodtimes has brought our family some of our fondest memories, we are forever greatful for the experience. Monet still benefits from the camp experience every year. Any amount donated with be greatly appreciated, thanks for your support!!! Please take a minute to visit my webpage: www.walkforkids.org/mossfamily

Tuesday, March 8, 2011

Busy, busy

Wow, it's been crazy busy around here. All the agencies paid us a visit once Billy Boy came home. We bought more shelves to put in his room for all the supplies we have recieved. Took Billy Boy to get Botox. Called all his Doctors to schedule all his appointments for the year (except once related to future illnesses.) Cut Billy Boy's hair. Interviewed 6 nurses for new shifts they are adding to his care (if anything good besides him breathing comfortably, is that he is now eligible for more nursing hours.)

In the mean time, we celebrated Monet's 10th birthday. She then got a fever and has been sick for three days, so I'm taking her in tomorrow morning. I'm pretty sure Billy Boy is having some kind of reaction to a new medicine they put him on in the hospital (Pulmicort) which is causing him to get really agitated and abdominal discomfort. I've been calling the pulmonologist since last Thursday, but apperantly the message was never relayed to him. He'll be in the office tomorrow so I will get him to switch it then. Billy Boy has an appointment with ENT on Thursday. I'm being audited at work this month so I have to make sure my files are in tip top shape.

Life is hectic and it doesn't seem to stop, but I try to take it one day at a time.