Summer

Summer vacation is here, and we have been busy. Monet ended the school year with a bang and a really fun party. She once a gain got straight A's the whole year. Billy Boy has had his ups and downs, but is feeling better. Dorcas, his nurse is leaving us after one and a half years to get her RN. She will always be a part of our lives, but we wish her the best! So, we are interviewing for a new nurse. I've had a few problems with the nursing agency, but if I continue to have them, I will switch agency's as well. I did like one of the nurses that we interviewed, but the agency wanted me to take another. If I don't get the one I wanted, I am done with them.

Billy Boy's orthopedic surgeon has left Loma Linda, so we will be meeting a new one in September. We will be getting a second opinion, and hopefully, no surgery will be needed, but we shall see.

Billy (Dad) got Monet a pool for the yard. His excused had always been that it would kill the grass, now that the grass is dead, there was no excuse. The grass started dying when Billy Boy got sick, and we didn't have the strength to rescue it all. We put all our energy into the family instead. Eventually I would like to do a desert landscape, but since we just finished all the construction inside, that will have to wait. Needless to say, Monet and I have been swimming daily.

Monet is starting Vacation Bible School next week, she is so excited! Then she goes to camp for a week. Yikes!

Billy is still riding his bike most mornings, and I'm still working on losing weight.

The end of the school year

It's hard to believe that it is June already! It seems like I have been filling out applications for the last six months. Insurance, services, programs, it never ends. Billy Boy has been doing pretty good. Tolerating his formula, regular bowel movements, and almost off Reglan. We've had some problems with the new supervisor nurse that comes once a month to flush his port a cath, so Dr. Kheradpour recommended that I start flushing his port. I had the training and starting next month, I will be his official port flusher. Billy is his official mickey changer.

Monet is almost done with 3rd grade and has maintained on the honor roll all year. She sang for the talent show at school, and is ready for her first solo week at Camp Ronald McDonald for Goodtimes! Wooo Hooo!