Our floors are finally done! We had a huge mess out here for the last couple of weeks, seems like the whole house was torn apart. Dust was everywhere. Thank God it is getting back together nicely.
May 4th was Billy Boy's 12th Birthday, we had all the construction going on that day, but celebrated on Mother's day at my sister-in-laws. Mother's day is always bitter sweet for me, I kinda get a little down on that day. Glad to be a Mom, but probably don't feel the job is as rewarding as most. That being said, Monet (with Billy's help) tries her hardest to make it special. It's just one of those days that I miss Billy Boy alot, and feel life's unfairness.
Billy Boy is still sleeping pretty good. He is tolerating his food great too. He is having these little "episodes" at night that worry me a little, but I have to see his Neurologist to discuss them. Meanwhile, we are slowly taking him off Reglan, so far, so good. He is down to only twice a day. He just had his annual visit with a physical therapist and occupational therapist at CCS. He is tolerating standing up to 20 minutes at a time, every week we will increase it by 5 minutes until he can stand for 1 hour. We are also hanging out on the driveway and getting sun every day. We'll see what we will do once it is over 100, I don't think hanging out in the sun will be a great idea at that point.
I'm looking forward to Monet being out of school for summer vacation. We have some fun things planned for her.
