Rough Day

Monet got an award at school yesterday for Outstanding Academic Achivement for the third year in a row. (It was also crazy hair day at school so that made for an interesting picture.) We are very proud of all her hard work!

It's been a rough day for us today. Hyperbarics in the morning. Billy Boy has been swallowing air like crazy and it is hard to vent his stomach. The more bloated he gets, the more he swallows. Ahhhhh... so hard to deal with it until he finally passes out from exhaustion. When he wakes up it starts all over again. We need to change this crazy schedule.

P.s. I've added some pictures to the last few blogs so take a look.

Tired

Billy Boy woke up at 5:00pm yesterday and stayed awake till 2:00pm today. Needless to say, I am very tired. Hopefully tonight I can get some sleep.

Schedule

We are still battling with Billy boy 's schedule. Some nights it affects us more than others. We are still noticing slight improvements so it makes it easier to deal with. We should be done with this round of Hyperbarics by June 12th, Monet's last day of school, so that will be nice.

Monet participated at the talent show at school. She performed a short stand up comedy routine. She was very nervous, so I was very proud of her. It all came out fine, and she was proud as well. She's already thinking of ideas for next year.

We are still waiting to hear about our contract, so please keep that in prayer, and we will let you know how it turns out.

Have an awesome Memorial Day weekend!!!

Sleepless nights

Billy Boy has his nights and days all topsy turvy. He's had several sleepless nights, which means we've had restless nights too. Hopefully his sleep pattern will change soon. Hyperbarics may be contributing to that as well. We finish this round of treatments the second week of June. Maybe then we can slowly reverse him back to a more tolerable sleep schedule.

My dieting and exercise habits have suffered too. I need to be more committed.

Good news

Billy Boy laughed when I tickled him for the first time since his accident. Yeah!!!!!!

Mother's Day

Just wanted to wish everyone a very pleasant and relaxing Mother's Day!!! Hopefully I can get through this one without getting too emotional. It is times like these that I miss the kid he used to be the most.
I must say, he has come such a long way. It makes it easier to handle. He smiles quite a bit now (even when he is awake.) He hasn't cried in months. He loves his stander and joins us more in his wheelchair. He lets us know when he is uncomfortable. Things are definetly better than last year :)

Billy Boy's 11th Birthday

Today is Billy Boy's 11th Birthday. We survived another year...Thank God!!! Joe & his family came today to wish Billy Boy a happy birthday. Joe gave Billy a card that I would like to share with everyone:

Billy,
You and I go way back. We've shared a lot together, so many happy times and tears, so many thoughts and dreams. Many frienships come and go throughout one's life, and yet ours has always changed and gotten stronger. And I just wanted you to know, especially on your birthday, how much that means to me. How very glad I am to have such a good friend. I love you always.
Best Friends, Joe Munoz

As far as best friends go, Billy Boy is one lucky kid!