We had a much better night! Still a lot of gas, but no pain. Praise be to God!

Bad Night

We had one of the worst nights since this happened. Billy Boy screamed in pain till 2:30 am. Today we started Reglan, Billy Boy has been very relaxed. Hopefully this will be a more peaceful night!

January 27th

It's my Birthday, the big 4-0!

Took a trip to the neurologist, all is well, don't need to see him again for a whole year!

We are still experiencing gas problems. The poor kid can't pass gas or burp, so he is in major discomfort. Unfortunately it is worse at night. We are still waiting for the results of the biopsy, hopefully they can put him on a stronger anti-gas medicine as well.

We are experiencing some technical difficulties with the RN that over sees the LVN in my home. Luckly, I just spoke to the Director of the Nursing Agency and she is switching the RN. Otherwise, I might of had to switch agencies and I really like the nurse we have. Thank God that's taken care of.

Results

Billy Boy had the EGD today. They gave us pictures they took of the endoscopy. Everything looked fairly o.k., with the exception of his stomach being full of food. The last time he ate was 9:00 last night, so he is having trouble digesting his food (which is causing all the other symptoms.) We also found out he now weighs 115 lbs., he's gained 9 lbs. in four months. They decreased his formula intake and increased water, so hopefully that helps both things. If the biopsys come back normal, they will also start Reglan again. I know that will help because it helped him in the past.

They used a sedative called Ketamine, which they say gives normal kids hallucinations. When he came back, he was all tweeky with rapid heartbeat, so apparently it gave him hallucinations too. Hopefully of happier times.

Endoscopy

Billy boy is having a tough week, besides crying when laying or sitting on his back, he is having major gas and bloating, diarreah, bile in his residual, severe reflux, and stomach cramps. The Gastroenterologist saw something in Billy Boys upper GI. Due to that and the problems he is still experiencing, he has ordered an Esophagogastroduodenoscopy (or EGD), which will take place Friday at 7:00am. Thank God! Hopefully we can figure out what is going on with this kid once and for all.

GI Problems

Still experiencing some stomach problems. We neeed to figure out what is going on with this poor kid. Unfortunately most of his problems are at night, so we must go on with very little sleep:( Help!

One awesome thing...my prayers have been answered, the nurse that we love has agreed to be my full time nurse! Yeahhhhhh!

Getting better

It's been a much better week. Billy Boy is feeling better little by little. He is being fed with the pump during the night, which seems to be helping his reflux, gas, or slow digestion problems (what ever they may be.)

We are also adjusting to nursing, and taking advantage of it. Our favorite nurse will be coming three days a week now, so we only need to find one for the other two.

Billy and I are trying to carry on with the rest of our lives (which is so hard to do.) We tend to just want to focus on Billy Boy, but we have other duties that must be tended to as well. We have been exercising, eating healthy again, spending time with Monet, and working.

A few doctors appointments are coming up, so hopefully all goes well there.

Back on track

Although he is not sleeping quite as soundly as Friday night. We are still seeing improvements. Billy Boy is still getting over that chest infection, so little by little, he's getting better.

Monet went back to school today, we are back at work. Everything is back to normal.

Billy (Dad) and I are back to eating healthy and exercising, we let it go for a year (for obvious reasons), but now we are back. Pray that we are able to achive our goals (especially me.)

Prayers

Our prayers are being answered, Billy Boy had the best night he has had in a long time (especially on full feeds.) We slept in till 8:00 (even Billy Dad.) Thank God!

Upper GI

Nissen is still in place, so we don't know what is going on. Will talk to his GI on Monday and see what we try next. Seems to be doing better (go figure.) We'll see how it goes. Please keep him in prayer!

ER

We spent 6 hours in the ER, a good portion of those with Billy Boy crying. Unfortunately, they were unable to do an upper GI. However, we did get one scheduled for Friday at 10:30 (it had been scheduled for January 12th.) Hopefully, we will find out why he is not tolerating any food and has such severe reflux. We beleive his Nissen slipped, but we shall find out soon. Meanwhile, we are trying to feed him very slowly, but he is still refluxing and moaning a lot. Poor kid!

By the way: Happy New Year!!! Let's pray this is a better year for us all.