ER

Billy Boy is having major reflux issues. At the request of the GI on call, we are headed to the ER. Will let you know what we find out.

Christmas

We made it through Christmas at home, with very little sleep, but we made it. However, Billy boy is having terrible reflux issues (perhaps the reason he got pneumonia.) We will call the GI in the morning and get an upper GI scheduled as soon as possible. Hopefully we wont aspirate before then.

The whole nursing thing has been very hard for us. I'm not sure if that will fascilitate things for us, or make them worse. We might have to consider having a nurse only three days per week (for now) so it doesn't seem so over whelming. Maybe we'll get used to it and will add more days later. Perhaps we just need to change one of the nurses and keep trying for a better fit. It will be easier to handle once the holidays are over and Billy Boy starts feeling better.

On a better note, we did have a very pleasant Christmas with the family. Monet said this was the best Christmas ever.

Urgent Care

Got up Sunday morning Billy Boy had a fever of 103.8. Took Billy Boy to Urgent Care and after 4 long hours, we were able to leave with antibiotics. Started them in the night time along with Mucinex. We are doing percussion vest & breathing treatments every four hours (including the middle of the night.) Today he woke up with a fever again, but we were able to bring it down much quicker. His chest junk is much looser and we are able to suction it out. Hopefully we can still beat this thing and enjoy the holidays at home.

Started a new nurse today, she will work Mondays and Tuesdays with us. She seems great, a real nice fit to our style. We start our new Wednesday thru Friday nurse this Wednesday, I hope she works out as well.

Monet is sooooo excited, and we are all really looking forward to a nice Christmas.

Sick

Monet still has a terrible cough. Now Billy Boy is sick too. Still has something wrong with his stomach, has junk in his nose and throat, and is runnng a fever. Please pray for them to get better quickly!!! I don't want to end up in the hospital for Christmas again.

Saturday Xmas Parties

Billy (Dad) & Monet went to the Ronald McDonald Christmas party at the Warner Brothers Studios. They got to see some of the camp families we hadn't seen in a while. Had to tell our stories a few times to some of the families that didn't know what happened, but they mostly enjoyed themselves. Monet even got a picture with Sam from ICarly.

In the evening Monet and I went to a party at Cindy's house (a friend from work.) She had a blast with Cindy's (adult) daughters. Monet always gravitates to the pretty girls. They even got her to sing karaoke. We partied till 11:00, Monet didn't want to leave. It felt nice to do something out of our comfort zone. The plan was to take Billy Boy, but he began to cry as we headed out the door. He is still getting over a virus or something funky with his stomach.

Now, Monet is getting sick. Threw up a couple of times Sunday and has a terrible cough. Pray she'll get better before Billy Boy ends up sick again.

Prayer request

Please pray for Monet, she has been experiencing some anxiety due to the upcoming days. My first son, Colton, passed away on December 15, 1996. Billy Boy went into cardiac arrest on December 16, 2007. She's afraid that her turn or ours maybe next.

I had planned to take those two days to grieve a little, but now will take time to reflect on all the ways we have been blessed. With her teacher's blessing, I will volunteer in her class on the 16th to spend some time with her. It will be another hurdle for us all.

Nursing

The nurse we got started last week. Her first day, Billy Boy was complaining and crying for hours, I thought it was gas or something. She told him "I'm leaving Billy" then turned around and told me, "I'm sure he's thinking good...leave!" I thought to myself "Nooo, he's not like that, he can't tell the difference" As soon as she left, he stoped moaning and crying! Still I thought it was a coincedence. As soon as she came in the next day and said "Hi Billy", he started moaning again. Then she barely touched him and he started crying! WOW!!!! He's in there and he knows that she is a stranger.

He had been turning his head to look for us, this nurse doesn't even know him, but can tell he is listening to everything. She told me I have been doing this a long time and have a handicap granddaughter myself and I can tell you that he IS in there and he IS listening to everything you say.

Today he once again was fussing and complaining. I went to help out at Monet's school, so as soon as I got back, I told her she could take off. Now remember, Billy Boy had been moaning and fussing, but as soon as I told her that he started to go "Ha...ha...ha...ha" My jaw dropped! The nurse said "Oh that's funny that I'm leaving?" Unbelievable, I'm pretty excited about all this. Next week a new nurse will start, hopefully she will be more to his liking.