G-tube

Monet had a tough first day at school. She was so nervous the night before, she made herself sick, and she couldn't fall asleep till midnight. Today was a different story, she got a goodnight sleep and had an awesome day. She still has one (of the two team) teachers to meet. She loves school!

We took Billy to see his Rehab Specialist this morning. The Botox shots are working:) She also put him on something to help him sleep, not that he has problems sleeping, but that way we can change his hours to ours. She also told us that we didn't need to get up at 3:00am anymore...YEAH! On another note, we noticed his Mickey (Gtube) was kinda sticking out farther than usual. We checked the balloon (that keeps it in place in his stomach), and it had popped. Good thing we just got trained on how to do it. Billy (Dad) changed it. I think we went into the wrong field.

School starting

Summer is over and it seems like it finished as soon as it started. Billy took Monet to Sea World to see it off, they had a great time. Billy Boy and I enjoyed our day as well.

Monet started school, with it came new trials. Hopefully it will all work out in the end. Billy Boy is doing good. He will be starting Hyperbarics next week (we will only do three days a week this time.)

We are still trying to sell the truck, we dropped the price down to $18,000 OBO if anyone is interested.

Great News!

It's been a few weeks since our last blog, my, how time flies. We have had a surprisingly pleasant summer. Of course there are things we still find difficult to do, but for now, we try to avoid those. We still have some down moments, with unanswered questions, but over all we feel hopeful.

We have been busy redecorating Monet's room and it is coming out beautiful! I wish I could portray how awesome, strong, supportive, sweet, loving, and trusting Monet has become through all this. She has been a blessing to us all.

Joe came to visit Billy Boy this week. He was filled with joy.. Billy had told him in a dream that he was going to wake up, we just had to be patient. We believe that more than anything. Billy has been turning his head in our direction again. If he cries, we can reassure him that he is OK, and he stops. Now, the greatest thing ever just happened, I asked Billy to stick out his tongue and after searching with his eyes, he puckered his lips. To make sure I wasn't just imagining this I asked him to do it six more times, then I called Billy (Dad) over to witness it. AMAZING! God is good! We feel his presence all around us.