This week

We have had a busy week. We finally received Billy Boy's new wheelchair (although it needs a few adjustments), it is so much better than the rental. We are still doing Hyperbarics (two weeks left to complete our first 40 sessions.) This takes a lot out of our schedule. Billy Boy has sure been relaxed this time around, it's been nice. We plan on starting our second session of Hyperbarics after Monet returns to school, so we can spend some time with her this summer.

Monet did Vacation Bible School at our church East Hills Community and we all went to see her Thursday evening as she declared her life to Jesus. It was great to have Billy Boy with us, and his first true outing outside of Hyperbarics and Doctor appointments. She also got to spend a day with our good friends Rachelle and Robert. They went swimming and had a great time. Friday and Saturday she spent the day with her best friend Erin. We are trying to keep her busy with local activities. She has been so awesome and understanding, it's incredible. We are so proud of her!

Tuesday, I volunteered to speak at Loma Linda to the Residents regarding bed side manners from a parents point of view. I'm honored they asked me and pretty excited since I feel I have a pretty good perspective on the subject. Thursday I have an ultrasound on my kidneys.

I am collecting small toys (Barbie size or smaller), jewelry, etc. for one of my Resident friends, Dr. Lori. She is going to Ethiopia in November with Hands of Mercy (a missionary group) and she passes out the toys to the ill stricken children she visits. They must be small in order to fit in her suitcase. In many cases the children have never seen a toy before. If anyone is able to donate any items, it is for a wonderful cause!

Relaxed

Even though we ran around all day yesterday, Billy Boy had a great day. Today he is also very RELAXED. The Hyperbarics are working Thanks to GOD!!!

Will be posting pictures shortly.

Back to Hyperbarics

We started (or should I say continued) Hyperbarics again. Billy Boy was very relaxed afterwards and slept all day and night. Today we couldn't go because we had an appointment with IHSS, but he stayed relaxed most of the day. Tomorrow we have a few appointments: hyperbarics in the morning, new wheelchair at 1:30, and post operation with pediatric surgery at 3:45. I have a feeling he wont be so relaxed tomorrow, but I will put it in God's hands. Friday we only have Hyperbarics, so it wont be so strenuous on him.

Monet enjoys the hour and a half that I get to spend with just her at the hyperbarics place. She has been a real pleasure through all this.

Father's Day

Happy Father's Day!!! I had a great day with Billy Boy yesterday, nice and relaxing. Billy (Dad) took Monet to her cousin Blake's 9th birthdya party and they had a really good time as well. The night went well for Billy Boy, but I was soooo nauseous (from the antibiotics.) I'm still feeling yucky! We plan on having a relaxing family day. Tuesday we start Hyperbaric treatments again.

Spoke too soon

Billy had a pretty good day yesterday. Today was a different story. He's been crying a bit more and has been really tight. I had to give him an enema and was worried he is having GI issues again (constipation). His spasticity increases any time he is uncomfortable adding to his pain. We just don't know day to day how he is going to feel. He needs to start Hyperbarics again.

I went back to the Doctors as well, it seems I still have a bladder infection. She switched my antibiotic and if the urine culture comes back positive, I will go in for an ultrasound of my kidneys. This has been a recurring problem for the last couple of years, and apparently stress doesn't help. (Oh well!)

Monet's last day of school was yesterday. She had an awesome report card and she pulled out her second top front tooth.

A better day

Wow, what a difference, Billy had a great day today. He was very relaxed and content. He also looked around when we called him. I pray this is a new start for him, I could really get used to this. Tomorrow the vendor is coming to see why the bath equipment is not going to work for him, and to give us suggestions on altering the tub or shower in order to make it work. His wheelchair should be ready this week too (can't wait!) We will restart Hyperbaric Treatments next week.

Monet had her end of the year picnic and had an awesome time.

I passed my annual audit (one less thing to worry about.)

Discomfort

Billy is still feeling some discomfort. It's hard to tell wether its from the junk in his chest, the surgery, his feeds, gas or something else. He was very loose and comfortable yesterday. Today he is very tight and moaning. Hopefully tomorrow will be a better day. Pray that he can have comfort and peace in his life again. In fact, we all need a little of that.

Monet pulled out one of her top front teeth. She was a little worried that she would look like a farmer. I'm sure when the tooth fairy comes, she will forget all about that.

Billy (Dad) found a tick on his shorts after working in the yard today. We will need to get the yard sprayed. Good thing we have a "bug" guy! :)

Home again

We are back. I can wear my PJ's to bed, go to the bathroom any time I want (was running a fever yesterday, went to the Dr's., had a bladder infection), take showers everyday, drink coffee in the morning, relax with the family, and yes, give Billy Boy the care he deserves.

Little by little, he keeps improving. Still coughing up left overs of the pneumonia. Tolerating feeds. Getting him out of bed and into the living room. Going to bed at normal hours, in a super soft comfy bed. Today he will get a haircut and a bath so he can feel refreshed.

Although we can't all go do things together, at least we can all hang out at home together. It's soooooo good to be home again!

Homeward Bound

We made it. Stayed in stepdown throughout the duration of our stay. We survived our neighbor's mother. Surgery went well, tolerating feeds. We are coming home! Hurray!!!!!!

Post op

Billy is doing well. He hardly needed any morphine after the surgery. Today he had his first bowel movement, and they started him on a small amount of feeds to make sure he will tolerate them. He even smiled in his sleep. He had a huge sneeze that caused him some pain, but he tolerated it. If feeding and bowel movements keep going well, we are hoping to come home by Wednesday. Can't wait to be back home again!

Monet received an award for Outstanding Academic Achievement last Friday. She was so excited and we are very proud of all her hard work!